Celine Dion pens a note on stiff person syndrome awareness day, calls it, ‘one of the hardest experiences’
On International Stiff Person Syndrome (SPS) Awareness Day, Celine penned an encouraging note on her Instagram as she expressed her gratitude to her fans and family for their constant support.
The Grammy-winning singer shared a photo in which she can be seen posing with her three sons René-Charles Angélil, 23, and Eddy and Nelson, 13.
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Writing that “it was one of the hardest experiences of my life”, Celine shared her wish to get back on stage again.
”Today the world recognizes International SPS Awareness Day. As many of you know, in the fall of 2022, I was diagnosed with Stiff Person Syndrome (SPS). Trying to overcome this autoimmune disorder has been one of the hardest experiences of my life, but I remain determined to one day get back onto the stage and to live as normal of a life as possible. I am deeply grateful for the love and support from my kids, family, team and all of you!” she wrote.
Check her IG post here:
After staying away from the media glare for months, Celine made a surprise appearance at the Grammy Awards in February, this year.
She appeared on the stage to present the award for Album of the Year. She awarded Taylor Swift for Midnights.
“When I say that I’m happy to be here, I really mean it from my heart,” she said on the Grammys stage. “Those who have been blessed enough to be here at the Grammy Awards must never take for granted the tremendous love and joy that music brings to our lives and to people all around the world.”
At the Grammys, the 55-year-old sang backstage as she performed an impromptu duet with the legendary songwriter Sonyaé.
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With her melodious voice, Dion performed a duet with Elise.
“Highlights of an ICONIC night So inspired & proud of my girls,” Sonyaé wrote in the caption of the post.
After her stiff person syndrome diagnosis, Celine has taken a break from her career. However, the singer is currently working on a documentary on herself and her struggle with neurological disorders.
The upcoming documentary titled I Am: Celine Dion will show the singer’s struggle with the syndrome.
Sharing details about her documentary on Instagram, Celine wrote, “This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me. As the road to resuming my performing career continues, I have realised how much I have missed it, of being able to see my fans.”
